Saturday, May 15, 2010: Post-chemo meeting with Dr. Johnson
Esther just finished her every-six-weeks chemotherapy week for amyloidosis. Here are Mickey's notes on the meeting with Dr. Johnson, her amyloidosis physician, on Friday, May 14:
Mom says only pains are in hands, and rates the pain at a 6. They look deformed to me.
Things are up and down on the Kappa LC Fr, but are trending down. 1/8th of first reading.
Elbow bumps (which I see for the 1st time) have been there forever.
Continue chemo therapy and shots for anemia.
Some swelling in legs, which is painful when touched.
In his opinion it would be OK for mom to visit Juneau between chemo cycles. Mom is very reluctant to go at this time and the trip is put off for now.
Tuesday, April 6, 2010 Hands
Esther just finished her every-six-weeks chemotherapy week for amyloidosis. Here are Mickey's notes on the meeting with Dr. Johnson, her amyloidosis physician, on Friday, May 14:
Mom says only pains are in hands, and rates the pain at a 6. They look deformed to me.
Things are up and down on the Kappa LC Fr, but are trending down. 1/8th of first reading.
Elbow bumps (which I see for the 1st time) have been there forever.
Continue chemo therapy and shots for anemia.
Some swelling in legs, which is painful when touched.
In his opinion it would be OK for mom to visit Juneau between chemo cycles. Mom is very reluctant to go at this time and the trip is put off for now.
Tuesday, April 6, 2010 Hands
Esther's biggest health concern continues to be her hands. Even when they don't hurt they just don't feel quite right, although they're better than before. She's taking Neurontin© daily, but sometimes the pain will cut through that and wake her up in the middle of the night. She has two things she tries when that happens. One is an alternative medicine technique she learned at Tiffy, gliding one hand over the other, "not touch, not rub, glide." The other is a more heavlily controlled drug that she tries to avoid.
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